South Norfolk Council unanimously agreed to support the motor neurone disease (MND) Charter at their meeting on 11 December 2017. The MND Charter raises awareness of the needs of local people living with this terminal disease, their families and carers. By supporting the MND Charter the council pledges to promote the Charter to all councillors, council staff, partner organisations and health and social care professionals who deliver services for the Council.
Motor neurone disease is a fatal, often rapidly progressing disease that can leave people locked in a failing body, unable to move, talk and eventually breathe. It kills around a third of people within a year of diagnosis, and more than half within two years. While some will live with the condition for a number of years there is no cure.
Unfortunately, this condition is still little understood and this contributes to many people with motor neurone disease waiting a long time for a diagnosis, and not always receiving the care and support they need. The MND Charter was launched to change this.
The MND Charter is a statement of the respect, care and support that people living with motor neurone disease and their carers deserve and should expect. The five points of the Charter are:
1. The right to an early diagnosis and information
2. The right to access quality care and treatments
3. The right to be treated as individuals and with dignity and respect
4. The right to maximise their quality of life
5. Carers of people with MND have the right to be valued, respected, listened to and well-supported
South Norfolk Cabinet member Yvonne Bendle said. “This is a very cruel disease and the Council has unanimously agreed to offer its support to both those suffering with Motor Neurone Disease and the people who care for them.”
Sue Heal, who enlisted the help of Cllr Yvonne Bendle and Cllr Lee Hornby to campaign to have the Council support the Charter said, “I am delighted with today's result. I look forward to working in partnership with South Norfolk Council to raise awareness of motor neurone disease and the needs of people living with it.”